Follow-up Programs for Survivors of Childhood Cancer More than 250,000 children, teens, and adults in the US are survivors of childhood cancer. The number of survivors is increasing dramatically due to the rising number of diagnoses and improved treatments. The surgery, radiation, and chemotherapy used to cure children can affect growing bodies and developing minds. Survivors need expert follow-up from trained professionals to improve their quality of life through early detection and intervention for late effects from treatment. While treatments for childhood cancer are improving, care for survivors is lagging behind. There is huge variability in the services provided by institutions to survivors of childhood cancer. To help survivors find the services they need, a survey of major children's hospitals across the nation was conducted to find out which ones provided comprehensive services to children, teens, and adults who are survivors of childhood cancer. The institutions on this list met the following criteria: The institution has a clinic specifically designed to treat survivors of childhood cancer. The clinic has a clinic coordinator (usually a nurse practitioner with special interest and skills in treating survivors). Survivors see a physician or nurse practitioner who is educated and experienced in treating the special needs of survivors with childhood cancer. The clinic refers survivors to specialists (endocrinologists, cardiologists, etc.) who are experienced in treating the special needs of survivors of childhood cancer. The following list provides survivors with options for meeting their unique medical and psychosocial needs. California Childrens Hospital Los Angeles LIFE Program (Long-term Information, Follow-up, and Evaluation) 4650 Sunset Boulevard, #54 Los Angeles, CA 90027 (323) 669-2489 Mary Nelson--coordinator David Tishler, MD Sees both child and adult survivors; provides referrals for adults. Children's Hospital of Orange County Long-Term Follow-Up Clinic 455 South Main Street Orange, CA 92868 (714) 289-4181 Melanie Maciasz, RN, BSN--coordinator Pamela Kempert, MD Lucille Packard Children's Hospital at Stanford Long-Term Follow-Up Clinic 725 Welch Road Palo Alto, CA 94304 (650) 497-8953 Tina Baggott--coordinator Neyssa Marina, MD Provides referrals for both child and adult survivors. City of Hope National Medical Center Long-Term Follow-up Clinic for Survivors of Childhood Cancer 1500 E. Duarte Road Duarte, CA 91010 (626) 359-5811 Wendy Landier, RN, MSN, CPNP--coordinator Smita Bhatia, MD Florida The Arnold Palmer Hospital for Women and Children FACT Clinic 83 W. Columbia Street Orlando, FL 32806 (407) 650-7230 Rebecca Martin--coordinator Rotating doctors. Nemours Children's Clinic Hematology/Oncology Clinic 807 Nira Street Jacksonville, FL 32207 (800) 767-5437, extension 2087 Joan Lawlor, RN, BSN--coordinator Rotating doctors. Georgia Children's Healthcare of Atlanta Children's Cancer Survivor Clinic 1405 Clifton Road Atlanta, GA 30322 Kathy Forte, PNP: (404) 315-2254 Lillian Meacham, MD: (404) 727-8232 Illinois Children's Memorial Hospital 2300 Children's Plaza Chicago, IL 60614 Karen Kinahan, MS, RN: (773) 880-4151 Elaine Morgan, MD Treats both child and adult survivors. Maryland Johns Hopkins Oncology Center Long-Term Follow-Up Clinic 600 N. Wolfe Street Baltimore, MD 21287 (410) 614-5062 Kathy Ruble, RN--coordinator Cindy Schwartz, MD Massachusetts Dana-Farber Cancer Institute David B. Perini, Jr. Quality of Life Clinic for Childhood Cancer Survivors 44 Binney Street Boston, MA 02115 (617) 632-5124 Ellen E. Casey--coordinator Lisa Diller, MD Michigan University of Michigan Department of Pediatric Hematology/Oncology Long -Term Follow-Up Clinic 1500 East Medical Center Drive Ann Arbor, MI 48109 (734) 936-9814 Marcia Leonard, RN, PNP--coordinator Val Castle, MD Minnesota Fairview-University Children's Hospital Long-Term Follow-Up Clinic Harvard Street and East River Road Minneapolis, Minnesota 55455 (612) 625-5411 Nancy Youngren, RN--coordinator Joseph Neglia, MD New Jersey University Medical Center Tomorrow's Children's Institution Care and Beyond 385 Prospect Avenue Hackensack, NJ 07607 (201) 968-9311 Hope Castoria, RN Beverly Ryan, MD New York Memorial Sloan-Kettering Cancer Center Long-Term Follow-Up Clinic Department of Pediatric Oncology 1275 York Avenue New York, NY 10021 (212) 639-8138 Charles Sklar, MD University of Rochester Medical Center Strong Children's Medical Center Follow-Up Clinic 601 Elmwood Avenue Rochester, NY 14642 (716) 275-2981 Cindy Proukou, RN, MSN, CPNP--coordinator Andrea Hinkle, MD Follows both child and adult survivors. Roswell Park Cancer Center Long-Term Follow-Up Project Elm and Carlton Buffalo, NY 14263 (716) 845-8011 Brenda Hall, RN, PNP--coordinator Daniel Green, MD Upstate Medical University Kids Now Off Therapy Pediatric Hematology/Oncology 750 E. Adams Street Syracuse, NY 13210 (315) 464-7229 Sue Shaw, RN, MS, PNP--coordinator Irene Cherrick, MD North Carolina Duke University Medical Center Pediatric Hematology/Oncology Erwin Road Durham, NC 27710 (919) 684-3401 Philip Rosoff, MD (children and teens) Carlos DeCastro, MD (adults) Ohio Children's Hospital Medical Center ATP Five-Plus Clinic 333 Burnette Avenue Cincinnati, OH 45229 (513) 636-4266 Judy Correll--coordinator Cynthia DeLaat, MD Sees both child and adult survivors; will refer. Pennsylvania Children's Hospital of Philadelphia Long-Term Follow-Up Clinic 34th and Civic Center Boulevard Philadelphia, PA 19401 (215) 590-3025 Wendy Hobbie--coordinator Sees both child and adult survivors. South Carolina Medical University of SC Children's Hospital FACT (Follow-up after Cancer Treatment) 165 Ashley Avenue PO Box 250911 Charleston, SC 29425 (843) 792-2957 Diane Dufour, MS, CPNP--coordinator Sonja Muckensuss, RN, BSN Julio Barredo, MD Texas Children's Medical Center of Dallas After the Cancer Experience (ACE) 1935 Motor Street Dallas TX 75235 (214) 456-2948 Debra Eshelman--coordinator Julie Katz, MD (children and teens) Kevin Oeffinger, MD (adults) M D Anderson Cancer Center Long-Term Survivor Clinic 1515 Holcombe, Box 87 Houston, TX 77030 (713) 792-2121 Hallie Zietz, RN, MSN, CPNP--coordinator Norman Jaffe, MD Steve Culbert, MD Children and teenagers are followed at the Long-Term Survivor Clinic; adults are followed at the Life after Cancer Clinic. Texas Children's Hospital Late Effects Clinic Hematology/Oncology 6621 Fannin Street Houston, TX 77030 (713) 770-4533 Sarah Bottomly--coordinator Jo Ann Dreyer, MD Life After Cancer Program Hematology & Oncology Center Cook Children's Medical Center 901 Seventh Avenue, Suite 220 Fort Worth, Texas 76104 (817) 885-4020 Jeffrey C. Murray, MD Wisconsin University of Wisconsin Hospital and Clinics Caring for Life 600 Highland Avenue Madison, WI 53792 (608) 262-5726 Peggy Possin--coordinator This fact sheet was developed by Nancy Keene, an author, with Wendy Hobbie and Kathy Ruccione, of Childhood Cancer Survivors: A Practical Guide to Your Future, © Patient-Centered Guides, 2000. Call (800) 998-9938 or check www.patientcenters.com for more information.